The International Low Grade Glioma Registry
An international effort to advance the study of low grade glioma
An unanswered question in neuro-oncology is: How should we best treat persons with low grade glioma brain tumors?
The International Low Grade Glioma Registry is a partnership of researchers, clinicians, patients, and care partners working together to reduce this knowledge gap.
The Low Grade Glioma Registry is unique because it focuses specifically on persons initially diagnosed with low grade glioma brain tumors (grade 2 or 3), as opposed to those diagnosed with high grade glioma (HGG) such as glioblastoma.
What do we hope to learn?
Through the Low Grade Glioma Registry, we hope to learn more about the effects treatments have on the daily life of patients and care partners.
The Registry has several goals:
Discover why some people develop glioma while other people do not
Examine whether variations in inherited tumor genes are associated with glioma and with response to treatment
Study how lifestyle factors such as diet, activity level, and occupation may be related with glioma risk and outcomes
Who is represented in the Low Grade Glioma Registry?*
SEX
DIAGNOSIS
ENROLLEES
>700 people
37 years: mean age at enrollment
Where do Low Grade Glioma Registry participants reside?
Students at the Yale School of Public Health participated in a map-design contest to reflect where participants in the International Low Grade Glioma Registry reside (data as of 11/1/2022). Out of the 70 participating students, the Research Advisory Council at OPTIMUM (a study within the LGG Registry) recognizes Wanjing Chen’s excellent work, displayed above.
Wanjing Chen, Yale School of Public Health (Biostatistics) class of 2024
Fostering Collaboration: Patients & Researchers Come Together
The Low Grade Glioma Registry is run by Dr. Elizabeth B. Claus, MD-PhD, at the Yale School of Public Health. A main goal of the Low Grade Glioma Registry is to partner with patients, develop a cohort of individuals interested in low grade glioma research, and design research questions that are important to people facing these tumors. We firmly believe that collaboration between patients and investigators across the world holds the key to advancing our understanding of low grade glioma management and evolution.
Join the Registry
First
Find out if your specific brain tumor diagnosis qualifies you to participate in the Low Grade Glioma Registry.
Next
If you are ready to participate in the Low Grade Glioma Registry, click the Join The Registry button below. This button will take you to a secure website hosted by the Yale School of Public Health.
Subscribe to email alerts
Be the first to know about new Low Grade Glioma Registry education, research, and initiatives for patients, care partners, and clinicians.
Looking for more information about Low Grade Glioma?
The American Brain Tumor Association (ABTA) has developed numerous informative brochures covering topics related to brain anatomy, different types of brain tumors, treatments, support resources, and more. Specific information about oligodendroglioma and astrocytoma may also be found in the “LGG Information” tab on this website.
Please select the button below to access the ABTA brochure library. Spanish and English versions are available.