https://gliomaregistry.org/contact daily 0.75 2022-03-16 https://gliomaregistry.org/faq daily 0.75 2025-07-28 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/dc37929f-9879-46c3-8a06-d5ce74d9b18d/claus_amigo.jpg FAQ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/d0a71bfd-d232-4e58-9e84-9c2b6185f48e/JAX+Genome+technology+lab+-7.jpg FAQ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://gliomaregistry.org/team daily 0.75 2026-03-25 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1648753626578-6DSISQBYFQBJS2FQ0NMI/kevin_johnson.jpg OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701434273-2CIV3BC1WGYMK9NEW6Q5/rose_du.jpg OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ccecc120-d8f0-4928-a676-83987950d720/Ryan%2BAngel%2BMeza-5258_LizSalmi_square.jpg OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7905002d-137b-4136-8830-c1c79f022b81/Screenshot+2023-07-10+at+2.43.54+PM.png OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/0aed8b72-dfa8-40fc-a4e9-981a7fede7f9/Annie+Heffernan+Headshot.png OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ee59c955-b8f1-4306-aab2-b48df4118255/Screenshot+2026-03-25+at+4.33.51%E2%80%AFPM.png OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/804b18ad-e8c8-4687-a30f-046c7f93a721/Screenshot+2026-03-25+at+4.32.58%E2%80%AFPM.png OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/abee408f-25c7-4022-8245-bbc3cf8187dd/Screenshot+2026-03-25+at+4.40.52%E2%80%AFPM.png OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/526bf7d1-1f3f-4da2-8555-662ae8bb6ef3/nestelynn_liz.jpg OPTIMUM - Make it stand out Nestelynn Gay and Liz Salmi serve as patient community leaders on the OPTIMUM Research Advisory Council. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ff5cc0e0-c942-4345-988f-9461b978d22d/elizabeth_claus.jpg OPTIMUM - Make it stand out Elizabeth B. Claus, PhD, MD https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b6fc8c0d-6fcb-4c9b-ba1e-8d05e717f850/roel-verhaak_square.jpg OPTIMUM - Make it stand out Roel Verhaak, PhD https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1639093612708-NA8V5DPJE622LVBNCMJQ/kwan-headshot-2019.jpg OPTIMUM - Make it stand out Bethany M. Kwan, PhD, MSPH https://gliomaregistry.org/privacy daily 0.75 2023-10-25 https://gliomaregistry.org/eligibility daily 0.75 2026-03-25 https://gliomaregistry.org/home daily 1.0 2026-03-25 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/e153b2bf-3629-43df-b705-ad339453fd48/Screenshot+2023-10-28+at+7.50.36+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c5990310-0878-415b-ac28-ce2a7f0840c2/2026+Winter+Newsletter-3.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b44be434-160f-43fd-957c-058edb9c4422/Screenshot+2023-07-03+at+12.54.17+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1eaacc62-88ab-41a3-98fd-18e6646ebe1a/Screenshot+2023-07-03+at+12.54.01+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/6ca9fe0f-af42-4d21-9d53-efe7162cf0b7/unnamed.jpg https://gliomaregistry.org/gallery daily 0.75 2025-05-23 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/00cf66cf-34f4-40dc-a1be-d992cd0bfbfe/PE-CGS+Annual+Meeting+Post.png Gallery OPTIMUM researchers, participants, and community partners attend the 2024 Participant Engagement and Cancer Genome Sequencing Annual Meeting in St. Louis, Missouri to share study updates and discuss best practices for engaging research participants and communicating research results. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/4e44e6e3-66f1-4ffe-ac64-4edbc2ec57a8/Screenshot+2024-06-20+at+3.57.41+PM.png Gallery Cancer Moonshot Seminar Series - On May 23, 2024, Ms. Liz Salmi from OPTIMUM and Dr. Kai Tan from Children's Hospital of Philadelphia jointly presented on the topic "Advancing Data Sharing through the Cancer Moonshot" during the Cancer Moonshot Seminar Series organized by the National Cancer Institute. Learn more from the recorded seminar. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ee90acd4-787b-4717-a9bb-c09a4f6ada76/Screenshot+2024-04-15+at+9.56.55+AM.png Gallery San Diego, California - Dr. Elizabeth Claus discusses engaging Latino communities in the LGG Registry at the 2024 AACR Annual Meeting in a presentation titled "Optimizing Engagement of Latino Communities to Promote Equity in Low Grade Glioma Genomic Research (OPEL)" Dr. Claus and collaborators of the LGG registry aim to advance representation and equity in glioma research. To view Dr. Claus' slides, please click on the image to be redirected. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/68515bd3-a82f-4cc0-b5bc-285122195777/Screenshot+2024-04-15+at+9.56.32+AM.png Gallery Researchers across the Participant Engagement and Cancer Genomic Sequencing network meet at the 2023 annual American Association for Cancer Research (AACR) conference in San Diego, California https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c871b547-a2b8-441f-9802-20b0b6037e2a/Screenshot+2023-11-30+at+11.39.50+AM.png Gallery OPTIMUM team members gather at the 2023 Participant Engagement and Cancer Genomic Sequencing (PE-CGS) Annual Meeting in Albuquerque, New Mexico. PE-CGS is a broader network for which OPTIMUM is a part of. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1699284268478-8SH4XZ06H5ZUW6EBFZBZ/IMG_4984.jpg Gallery Annie Heffernan (Research Associate, right), Elizabeth Claus (LGG Registry founder, center), and Mathew Krick (Research Associate, left) representing OPTIMUM's Participant Engagement Unit (PEU) at the Participant Engagement in Cancer Genomic Sequencing annual meeting in Albuquerque, New Mexico. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/43aa7f70-020a-4dd7-8226-8957a981f95d/NBTS_walk_2023.jpg Gallery Annie Heffernan (right), LGG Registry/OPTIMUM research associate, represents the Brigham and Women's Department of Neurosurgery at the 2023 NBTS New England Brain Tumor Walk. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b7eceb4b-e677-4370-8e87-825fdbb12bb9/unnamed.jpg Gallery The Genomic Characterization Unit (GCU) at OPTIMUM is led by co-Principal Investigator Roel Verhaak, PhD. The GCU is responsible for studying genetic changes among recurrent glioma tumors. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/cd75bd61-ab77-4489-b7b5-5129ad887e9f/0-1.jpeg Gallery LGG Registry and OPTIMUM research associate, Annie Heffernan, MPH, was presented with a Junior Investigator Award, sponsored by the American Brain Tumor Association (2023 Brain Tumor Epidemiology Consortium Annual Meeting). You may read more of her work at: https://pe-cgs.org/resources/ https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b0c59b8e-90f0-4f1b-80f6-d1bd2f762b58/Screenshot+2023-08-14+at+10.52.01+AM.png Gallery Research Advisory Council (RAC) Members of our Low-Grade Glioma Registry OPTIMUM project gather as part of the Quality of Life Roundtable Meeting in Washington, DC with the National Brain Tumor Society - May 2023. https://gliomaregistry.org/gliomainfirefighters daily 0.75 2025-05-23 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/211ba39b-8fa0-414b-a589-6548642078b2/Screenshot+2023-08-02+at+10.02.22+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/02b93141-b562-4c43-abb1-55d0e69a29f8/Screenshot+2023-08-02+at+10.04.03+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/0afbbef1-35ec-4a97-9c67-293f7173ebc2/Screenshot+2023-08-02+at+10.05.57+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/a90b4724-fe93-4387-a335-05182253eba3/Screenshot+2023-08-02+at+10.13.15+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/9ba4d8c8-be06-4dc0-b09c-bb86cf2270d6/Screenshot+2023-08-02+at+10.14.34+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/be1f732c-fadd-4359-ba33-87dbdf0fa7ec/Screenshot+2023-08-02+at+11.43.34+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/f8a3dd34-e382-4d52-8edc-1a6c1fc9b39b/Screenshot+2023-08-02+at+11.44.34+AM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/429c8c74-3332-404e-8101-be5703cadc34/Screenshot+2023-08-02+at+1.01.19+PM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/647043ba-1730-4722-bf8d-ef27e67af1e3/Screenshot+2023-08-03+at+1.48.19+PM.png Glioma in Firefighters https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/11cb66a9-2cdd-43c4-a856-6cad562fbe06/Click+Here+To+Read+our+latest+publication.png https://gliomaregistry.org/lggquality-of-life daily 0.75 2025-05-23 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/3f289c1a-d0d0-4d7c-ae39-9074a0098452/Screenshot+2023-08-02+at+10.02.22+AM.png LGG Quality of Life https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/39ed02c9-64de-4af5-9b3f-2cd5dce15af4/Screenshot+2023-08-02+at+3.20.05+PM.png LGG Quality of Life https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/a52567c7-5365-4d4c-b823-f711a694725f/Screenshot+2023-08-02+at+3.02.41+PM.png LGG Quality of Life https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7b3a7d63-a194-4c4a-b5f2-30fb067deac3/Screenshot+2023-08-02+at+3.20.37+PM.png LGG Quality of Life https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c6c09570-fa9a-4e5f-8719-1855a4ba59d1/Screenshot+2023-08-02+at+3.02.35+PM.png LGG Quality of Life https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c5ccda5e-3d82-4781-a8e4-d2132d4ef83b/Screenshot+2023-08-02+at+3.20.21+PM.png LGG Quality of Life https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7fa09739-9a38-497b-8d6f-deea185ec384/0-1.jpg https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c1fc0a1a-6555-4e2e-bdcc-eff74f6a59de/Screenshot+2023-08-04+162822.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7676eee2-cb93-4c42-9ce3-0efac5173219/Screenshot+2023-08-04+162830.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ae10a90c-62ff-4d69-9981-4a5bdd63e39e/Screenshot+2023-08-04+161440.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/f5a44a2f-3910-414d-96fa-1207e29a467b/Screenshot+2023-08-04+161429.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/429da1a3-d23e-4cb7-bac0-df9ef0dab2a9/Screenshot+2023-08-04+162851.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/9e1878b5-40b9-4a0a-8d54-6815f6efca9d/Screenshot+2023-08-04+162859.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/92f7d5fd-c7e5-4a35-ae11-92435c882c0f/Screenshot+2023-08-04+162908.png https://gliomaregistry.org/criterios daily 0.75 2024-04-02 https://gliomaregistry.org/estudio-optimum daily 0.75 2024-02-08 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ccecc120-d8f0-4928-a676-83987950d720/Ryan%2BAngel%2BMeza-5258_LizSalmi_square.jpg Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1648753626578-6DSISQBYFQBJS2FQ0NMI/kevin_johnson.jpg Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701434273-2CIV3BC1WGYMK9NEW6Q5/rose_du.jpg Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701304226-33GZDBQUNR2AUU3TWN2R/e_kevin_hall.jpg Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701359266-5S2ZL39J6EZN20I682EN/cait_desroches.jpg Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1654640880448-C404ENWZEWK7MZ8D4SL9/image001+%281%29.jpg Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7905002d-137b-4136-8830-c1c79f022b81/Screenshot+2023-07-10+at+2.43.54+PM.png Estudio OPTIMUM https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/526bf7d1-1f3f-4da2-8555-662ae8bb6ef3/nestelynn_liz.jpg Estudio OPTIMUM - Make it stand out Nestelynn Gay y Liz Salmi sirven como líderes representando a la comunidad de pacientes con GBG en el Consejo Asesor de Investigación de OPTIMUM. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ff5cc0e0-c942-4345-988f-9461b978d22d/elizabeth_claus.jpg Estudio OPTIMUM - Make it stand out Elizabeth B. Claus, PhD, MD https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b6fc8c0d-6fcb-4c9b-ba1e-8d05e717f850/roel-verhaak_square.jpg Estudio OPTIMUM - Make it stand out Roel Verhaak, PhD https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1639093612708-NA8V5DPJE622LVBNCMJQ/kwan-headshot-2019.jpg Estudio OPTIMUM - Make it stand out Bethany M. Kwan, PhD, MSPH https://gliomaregistry.org/galeria daily 0.75 2024-04-15 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b0c59b8e-90f0-4f1b-80f6-d1bd2f762b58/Screenshot+2023-08-14+at+10.52.01+AM.png Galería Los miembros del Consejo Asesor de Investigación de nuestro Proyecto OPTIMUM del Registro de Glioma de Bajo Grado se reunieron como parte de la Discusión de Calidad de Vida en Washington, DC con la Sociedad Nacional de Tumores Cerebrales – Mayo de 2023 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/cd75bd61-ab77-4489-b7b5-5129ad887e9f/0-1.jpeg Galería Annie Heffernan, MPH, investigadora del Registro de GBG y OPTIMUM recibió el Premio de Investigadores Jóvenes de la Asociación Estadounidense de Tumores Cerebrales (Reunión Annual del Consorcio de Epidemiología de Tumores Cerebrales de 2023). Puede aprender más de su trabajo en: https://pe-cgs.org/resources/ https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/4a438f13-a766-46bb-8c70-e545ec8fe496/IMG_4984.jpg Galería Annie Heffernan, la Dra. Elizabeth Claus (Directora), y Mathew Krick representaron el "Participant Engagement Unit" del estudio OPTIMUM en la conferencia de "Participant Engagement and Cancer Genomic Sequencing" en Albuquerque, New Mexico. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7ef8a8b3-182c-4e23-8b54-b5e1e8b31f9b/Screenshot%2B2023-11-30%2Bat%2B11.39.50%2BAM.png Galería Miembros de OPTIMUM se reunieron en la conferencia llamada Participant Engagement and Cancer Genomic Sequencing (PE-CGS) Albuquerque, New Mexico. OPTIMUM pertenece en una red de estudios llamada PE-CGS. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1f2fdc9c-46b4-4962-9df0-a45509ea5708/unnamed.jpg Galería El "Genomic Characterization Unit" (el grupo que estudia los genes) de OPTIMUM es dirigido por Roel Verhaak, PhD. El GCU estudia los cambios genéticos en los gliomas que reaparecen. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/8bbe7f7b-6a55-4ec9-930c-16fd4c51f3b2/NBTS_walk_2023.jpg Galería Annie Heffernan (a la derecha) representa el Departamento de Neurocirugía de Brigham and Women's Hospital en el New England Brain Tumor Walk de NBTS. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ce589244-a0b6-4567-b7bc-db0beeabccea/Screenshot+2024-04-15+at+9.56.32+AM.png Galería Miembros del Participant Engagement and Cancer Genome Sequencing se reunieron en la conferencia anual del American Association for Cancer Research en San Diego, California https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/474a5c52-e6e3-4a1a-a12e-1461a56d6188/Screenshot+2024-04-15+at+9.56.55+AM.png Galería La Dra. Elizabeth Claus habló sobre el tema de involucrando a las comunidades Latinas en el registro de GBG en la conferencia anual 2024 del American Association for Cancer Research. La Dra. Claus presentó "Optimización de la Participación de las Comunidades Latinas para Promover Equidad en Investigaciones sobre Gliomas de Bajo Grado." La Dra. Claus y colaboradores del registro tienen como objetivo avanzar la representación y equidad en investigaciones sobre el glioma. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c00c3341-1553-4a00-baa3-bd597f8c6816/Screenshot+2024-06-20+at+3.57.41+PM.png Galería El 23 de mayo del 2024 - La Sra. Liz Salmi de OPTIMUM y Dr. Kai Tan del Children's Hospital de Filadelfia presentaron conjuntamente sobre el tema "Avanzando en el intercambio de datos a través del Cancer Moonshot" durante la Serie de Seminarios Web sobre el Cancer Moonshot organizada por el Instituto Nacional del Cáncer (NCI). Obtenga más información del seminario grabado. https://gliomaregistry.org/espanol daily 0.75 2024-06-05 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c54fddc3-a4cc-43b2-b6a4-11149247059e/Screenshot+2023-10-28+at+7.50.36+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/81db5271-059d-4267-8947-918a9d553e97/Screenshot+2024-06-05+at+10.55.43+AM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/e7bad0ef-0744-42d0-98e9-50c443dfce01/Screenshot+2024-02-13+at+4.11.33+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/d03e7eaf-d3d5-49f3-af0c-0e066b3a7dcb/Screenshot+2024-05-05+at+11.16.17+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/dcc93717-5974-44a4-80f6-5ed68d95d060/Screenshot+2023-11-17+at+1.27.25+PM.jpg https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c209e510-9cb8-49fe-95fb-0bbae93f64ca/Screenshot+2023-10-03+at+10.47.53+AM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b363b526-3c6e-44c3-b966-1baa315bf673/Screenshot+2023-10-03+at+10.48.17+AM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/6ca9fe0f-af42-4d21-9d53-efe7162cf0b7/unnamed.jpg https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/cbf51df4-527c-4f2b-851d-9e8c5629a9d4/Screenshot+2024-04-02+at+2.30.35+PM.png https://gliomaregistry.org/faq-1 daily 0.75 2024-02-08 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/dc37929f-9879-46c3-8a06-d5ce74d9b18d/claus_amigo.jpg Preguntas Frecuentes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/d0a71bfd-d232-4e58-9e84-9c2b6185f48e/JAX+Genome+technology+lab+-7.jpg Preguntas Frecuentes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://gliomaregistry.org/astrocytoma daily 0.75 2025-05-23 https://gliomaregistry.org/oligodendroglioma daily 0.75 2025-05-23 https://gliomaregistry.org/home-1 daily 0.75 2023-11-26 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b44be434-160f-43fd-957c-058edb9c4422/Screenshot+2023-07-03+at+12.54.17+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1eaacc62-88ab-41a3-98fd-18e6646ebe1a/Screenshot+2023-07-03+at+12.54.01+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/6ca9fe0f-af42-4d21-9d53-efe7162cf0b7/unnamed.jpg https://gliomaregistry.org/disability daily 0.75 2025-05-23 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/452a9fd8-88f0-4072-9991-cc4cf1bbc210/GAMpPRHWoAAjbMM.jpg https://gliomaregistry.org/astrocytoma-1 daily 0.75 2024-04-02 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/bbfea1d1-1ee0-46ea-81e4-f049836d90b1/Screenshot+2024-04-02+at+2.22.51+PM.png https://gliomaregistry.org/gallery-1 daily 0.75 2023-12-11 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b0c59b8e-90f0-4f1b-80f6-d1bd2f762b58/Screenshot+2023-08-14+at+10.52.01+AM.png Galería Research Advisory Council (RAC) Members of our Low-Grade Glioma Registry OPTIMUM project gather as part of the Quality of Life Roundtable Meeting in Washington, DC with the National Brain Tumor Society - May 2023. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/cd75bd61-ab77-4489-b7b5-5129ad887e9f/0-1.jpeg Galería LGG Registry and OPTIMUM research associate, Annie Heffernan, MPH, was presented with a Junior Investigator Award, sponsored by the American Brain Tumor Association (2023 Brain Tumor Epidemiology Consortium Annual Meeting). You may read more of her work at: https://pe-cgs.org/resources/ https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b7eceb4b-e677-4370-8e87-825fdbb12bb9/unnamed.jpg Galería The Genomic Characterization Unit (GCU) at OPTIMUM is led by co-Principal Investigator Roel Verhaak, PhD. The GCU is responsible for studying genetic changes among recurrent glioma tumors. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/43aa7f70-020a-4dd7-8226-8957a981f95d/NBTS_walk_2023.jpg Galería Annie Heffernan (right), LGG Registry/OPTIMUM research associate, represents the Brigham and Women's Department of Neurosurgery at the 2023 NBTS New England Brain Tumor Walk. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1699284268478-8SH4XZ06H5ZUW6EBFZBZ/IMG_4984.jpg Galería Annie Heffernan (Research Associate, right), Elizabeth Claus (LGG Registry founder, center), and Mathew Krick (Research Associate, left) representing OPTIMUM's Participant Engagement Unit (PEU) at the Participant Engagement in Cancer Genomic Sequencing annual meeting in Albuquerque, New Mexico. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c871b547-a2b8-441f-9802-20b0b6037e2a/Screenshot+2023-11-30+at+11.39.50+AM.png Galería OPTIMUM team members gather at the 2023 Participant Engagement and Cancer Genomic Sequencing (PE-CGS) Annual Meeting in Albuquerque, New Mexico. PE-CGS is a broader network for which OPTIMUM is a part of. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/05602aae-3ae2-425e-98d3-3405b8d0be7b/Screenshot+2024-04-15+at+9.56.32+AM.png Galería Investigadores de la red de Participant Engagement and Cancer Genome Sequencing se reunieron en la conferencia anual 2023 del American Association for Cancer Research en San Diego, California. https://gliomaregistry.org/home-2 daily 0.75 2023-12-11 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/e153b2bf-3629-43df-b705-ad339453fd48/Screenshot+2023-10-28+at+7.50.36+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b44be434-160f-43fd-957c-058edb9c4422/Screenshot+2023-07-03+at+12.54.17+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1eaacc62-88ab-41a3-98fd-18e6646ebe1a/Screenshot+2023-07-03+at+12.54.01+PM.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/6ca9fe0f-af42-4d21-9d53-efe7162cf0b7/unnamed.jpg https://gliomaregistry.org/eligibility-2 daily 0.75 2023-12-11 https://gliomaregistry.org/team-1 daily 0.75 2023-12-11 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ccecc120-d8f0-4928-a676-83987950d720/Ryan%2BAngel%2BMeza-5258_LizSalmi_square.jpg OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1648753626578-6DSISQBYFQBJS2FQ0NMI/kevin_johnson.jpg OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701434273-2CIV3BC1WGYMK9NEW6Q5/rose_du.jpg OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701304226-33GZDBQUNR2AUU3TWN2R/e_kevin_hall.jpg OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1649701359266-5S2ZL39J6EZN20I682EN/cait_desroches.jpg OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1654640880448-C404ENWZEWK7MZ8D4SL9/image001+%281%29.jpg OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7905002d-137b-4136-8830-c1c79f022b81/Screenshot+2023-07-10+at+2.43.54+PM.png OPTIMUM (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/526bf7d1-1f3f-4da2-8555-662ae8bb6ef3/nestelynn_liz.jpg OPTIMUM (Backup Copy) - Make it stand out Nestelynn Gay and Liz Salmi serve as patient community leaders on the OPTIMUM Research Advisory Council. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ff5cc0e0-c942-4345-988f-9461b978d22d/elizabeth_claus.jpg OPTIMUM (Backup Copy) - Make it stand out Elizabeth B. Claus, PhD, MD https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b6fc8c0d-6fcb-4c9b-ba1e-8d05e717f850/roel-verhaak_square.jpg OPTIMUM (Backup Copy) - Make it stand out Roel Verhaak, PhD https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1639093612708-NA8V5DPJE622LVBNCMJQ/kwan-headshot-2019.jpg OPTIMUM (Backup Copy) - Make it stand out Bethany M. Kwan, PhD, MSPH https://gliomaregistry.org/gliomainfirefighters-1 daily 0.75 2023-12-11 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/0afbbef1-35ec-4a97-9c67-293f7173ebc2/Screenshot+2023-08-02+at+10.05.57+AM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/a90b4724-fe93-4387-a335-05182253eba3/Screenshot+2023-08-02+at+10.13.15+AM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/211ba39b-8fa0-414b-a589-6548642078b2/Screenshot+2023-08-02+at+10.02.22+AM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/9ba4d8c8-be06-4dc0-b09c-bb86cf2270d6/Screenshot+2023-08-02+at+10.14.34+AM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/be1f732c-fadd-4359-ba33-87dbdf0fa7ec/Screenshot+2023-08-02+at+11.43.34+AM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/429c8c74-3332-404e-8101-be5703cadc34/Screenshot+2023-08-02+at+1.01.19+PM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/647043ba-1730-4722-bf8d-ef27e67af1e3/Screenshot+2023-08-03+at+1.48.19+PM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/f8a3dd34-e382-4d52-8edc-1a6c1fc9b39b/Screenshot+2023-08-02+at+11.44.34+AM.png Firefighters and Glioma (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/02b93141-b562-4c43-abb1-55d0e69a29f8/Screenshot+2023-08-02+at+10.04.03+AM.png Firefighters and Glioma (Backup Copy) https://gliomaregistry.org/lggquality-of-life-1 daily 0.75 2023-12-11 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/39ed02c9-64de-4af5-9b3f-2cd5dce15af4/Screenshot+2023-08-02+at+3.20.05+PM.png LGG Quality of Life (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c6c09570-fa9a-4e5f-8719-1855a4ba59d1/Screenshot+2023-08-02+at+3.02.35+PM.png LGG Quality of Life (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/a52567c7-5365-4d4c-b823-f711a694725f/Screenshot+2023-08-02+at+3.02.41+PM.png LGG Quality of Life (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c5ccda5e-3d82-4781-a8e4-d2132d4ef83b/Screenshot+2023-08-02+at+3.20.21+PM.png LGG Quality of Life (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7b3a7d63-a194-4c4a-b5f2-30fb067deac3/Screenshot+2023-08-02+at+3.20.37+PM.png LGG Quality of Life (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/3f289c1a-d0d0-4d7c-ae39-9074a0098452/Screenshot+2023-08-02+at+10.02.22+AM.png LGG Quality of Life (Backup Copy) https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7fa09739-9a38-497b-8d6f-deea185ec384/0-1.jpg https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c1fc0a1a-6555-4e2e-bdcc-eff74f6a59de/Screenshot+2023-08-04+162822.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/7676eee2-cb93-4c42-9ce3-0efac5173219/Screenshot+2023-08-04+162830.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/ae10a90c-62ff-4d69-9981-4a5bdd63e39e/Screenshot+2023-08-04+161440.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/f5a44a2f-3910-414d-96fa-1207e29a467b/Screenshot+2023-08-04+161429.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/429da1a3-d23e-4cb7-bac0-df9ef0dab2a9/Screenshot+2023-08-04+162851.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/9e1878b5-40b9-4a0a-8d54-6815f6efca9d/Screenshot+2023-08-04+162859.png https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/92f7d5fd-c7e5-4a35-ae11-92435c882c0f/Screenshot+2023-08-04+162908.png https://gliomaregistry.org/clinical-trials-1 daily 0.75 2023-12-11 https://gliomaregistry.org/gallery-2 daily 0.75 2023-12-11 https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b0c59b8e-90f0-4f1b-80f6-d1bd2f762b58/Screenshot+2023-08-14+at+10.52.01+AM.png Gallery (Backup Copy) Research Advisory Council (RAC) Members of our Low-Grade Glioma Registry OPTIMUM project gather as part of the Quality of Life Roundtable Meeting in Washington, DC with the National Brain Tumor Society - May 2023. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/cd75bd61-ab77-4489-b7b5-5129ad887e9f/0-1.jpeg Gallery (Backup Copy) LGG Registry and OPTIMUM research associate, Annie Heffernan, MPH, was presented with a Junior Investigator Award, sponsored by the American Brain Tumor Association (2023 Brain Tumor Epidemiology Consortium Annual Meeting). You may read more of her work at: https://pe-cgs.org/resources/ https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/b7eceb4b-e677-4370-8e87-825fdbb12bb9/unnamed.jpg Gallery (Backup Copy) The Genomic Characterization Unit (GCU) at OPTIMUM is led by co-Principal Investigator Roel Verhaak, PhD. The GCU is responsible for studying genetic changes among recurrent glioma tumors. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/43aa7f70-020a-4dd7-8226-8957a981f95d/NBTS_walk_2023.jpg Gallery (Backup Copy) Annie Heffernan (right), LGG Registry/OPTIMUM research associate, represents the Brigham and Women's Department of Neurosurgery at the 2023 NBTS New England Brain Tumor Walk. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/1699284268478-8SH4XZ06H5ZUW6EBFZBZ/IMG_4984.jpg Gallery (Backup Copy) Annie Heffernan (Research Associate, right), Elizabeth Claus (LGG Registry founder, center), and Mathew Krick (Research Associate, left) representing OPTIMUM's Participant Engagement Unit (PEU) at the Participant Engagement in Cancer Genomic Sequencing annual meeting in Albuquerque, New Mexico. https://images.squarespace-cdn.com/content/v1/61ae66f05c91ec7b6f83525a/c871b547-a2b8-441f-9802-20b0b6037e2a/Screenshot+2023-11-30+at+11.39.50+AM.png Gallery (Backup Copy) OPTIMUM team members gather at the 2023 Participant Engagement and Cancer Genomic Sequencing (PE-CGS) Annual Meeting in Albuquerque, New Mexico. 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